Hello, I thought I would let you know about various issues we have been having with the benefit system.
I am a 48-year-old who is very unwell. I suffer from Chronic Inflammatory Demyelinating Polyneuropathy. It’s a cross between M.E and M.S and causes terrible pain all over my body. My mobility is very poor and I have had several operations on [my] stomach due to severe problems. I also suffer from I.B.S and have seizures.
Things have become so bad that my husband has had to give up work to care for me, because I cannot be left on my own for any length of time. I need help in doing most things.
I was called in for a medical [assessment] three years ago, which was cancelled twice as they did not have the staff. Once we were not told it was cancelled until we had got there. I got my Employment and Support Allowance (ESA), but then about eighteen months ago I was called in for yet another assessment.
I went to the Luton office as instructed to do so. On arrival, I was then told I would have to go as I was in my wheelchair and that if there was a fire I would not be able to get out of the building. The medical [assessment] office was on the top floor. When I was asked what I should do, and could they put something in writing to say I had attended, I was ‘tutted’ at and told to wait.
In all I was kept waiting for twenty minutes, to which I pointed out [that] they could have done some of my assessment in that time. I was advised to go home [and that] it had been noted I had attended, even though they would not give me anything there and then in writing. I would be sent another appointment and advice on what to do next.
Three days later a letter arrived giving me another appointment, but again is was for the same place. I called and explained [what had happened previously] and was told this was an error and not to go – another appointment would be sent.
Another letter arrived, but again stating to go back to the Luton office. It was a nightmare and caused a lot of upset and stress. In the end, a month later, I was sent an appointment to go to another office twenty miles away. I am pleased to say my claim was upheld.
But, I am sorry to say, that was not the last issue we have had. Last year I got another form to fill in for my ESA. My husband and I eventually [completed] the form and sent it off by recorded post (I have learnt not to send anything that cannot be traced). After two months I had [still] not heard anything, so I called them to find out what was going on. I was told they had received all my paperwork on July 18th 2013 and [that] I would hear back within the next two months. Again I waited [but] by end of October [I had still not] heard anything, so I called [them] again to be told they could not find anything. I was very upset, and yes angry, about this and pointed out that I had already been told it had been received on July 18th, All of a sudden it was found. I was told should hear [something] by the new year. [To date] I have had nothing back from them and as I am still getting my ESA I have [decided] not to rock the boat. I just hope no news is good news and [that] I carry on getting my benefits.
I was advised whilst all this was ongoing, that my husband was entitled to a little bit of Income Support. We applied, received a letter saying he would get about £8 a week paid monthly and advised to check to see if he was entitled to any back-pay. We did this and wish we had not. It led to a number of phone calls from the manager of Luton Jobcentre asking why we had passed things on to my MP. I told her I had done this as I was not getting anywhere in getting the money paid to my husband, which we had been told he was entitled too.
After a couple of days Alan [received] a payment but was told that there was no back pay. Again, I questioned this. Another very nasty call from Luton Job Centre, the manager again told us that we had caused a problem, to which I asked why, and got no proper answer.
She then said she was going to stop the income support that was going to Alan. I asked why and could she do that? To which she said she could, and would do it, and if we wanted to do anything about it we would have to stop our ESA claim and put in a joint claim for Income support, but it could take up to sixteen weeks and whilst it was being looked in to we would get no money. Well,.. of course we cannot do that, so we are losing out on the small amount of income support we should and did get for a short time. This seems very unfair. If we are entitled then we should get it, surely?
I dread a brown envelope coming through the door and am desperate and very worried about the changeover from Disability Living Allowance (DLA) to Personal Independence Payments (PIP). It’s already causing worry, stress and sleepless nights.
I do not know what we will do if it is stopped for any reason as I cannot go to work. I did not choose this, the [medical[ conditions chose me. I had a good job in a company I loved working for and I did not want to go on benefits.
Like many people, I am made to feel unworthy and nothing but a scrounger.
Sorry this is all a bit long-winded, but I feel [like] I wanted to get as much information down as possible. I know there are plenty [of] others that are in a worse situation because of benefits being withdrawn. My heart really goes out to them.
If, like us, you are deemed to have a spare room, that is another worry, upset and obstacle to cope with.
This government will not be happy until we have all starved, frozen to death or back in the workhouses of the Victorian era.
We have also had to go cap in hand twice to a food bank, and I often just have soup and 2 slices of toast in a day. I try to do my best, but things are so expensive and it is very hard. I feel terrible that my illness has such a negative knock-on effect on my husband and son, as many others do. I wonder if my family would be better off with out me?
Thank you very much for taking the time to read all of this.
Source – Welfare News Service, 17 May 2014
By Helen Sims
As I write this I am recovering from what we campaigners call ‘Brown Envelope Disorder’ – or ‘White Envelope Disorder’ (since it applies in equal measures now). It is what happens to a disabled or ill [benefit claimant] when a brown or white envelope appears on the doormat, particularly those marked ‘DWP’ –Department for Work and Pensions.
I was upstairs, waiting for my painkillers to kick in, when the letterbox went. For an ‘everyday’ person, it is normality. It is part of life. However, if you are disabled or an ill benefit claimant, living under the constant threat of an ATOS assessment or benefit sanction, [the sound of the letterbox] immediately causes the blood pressure to rise, and panic to kick in.
I’m sat on the bottom of the stairs, shaking and looked at the brown envelope (marked DWP) on the mat. Even though I know (rationally) that ATOS assessment envelopes are usually white, and that I am not due to be assessed for Personal Independence Payment (PIP) – the government’s replacement for Disability Living Allowance – for at least a year, the effect on me (and so many other ill and disabled people) is a reaction of pure fear. I sat there, unable to move, almost as if I was frozen to the spot. Rationality doesn’t come into it anymore. They play games, change dates, change criteria; so even if you think you know what’s what, (and when), for me (and so many others) the fear is still there. My heart begins to pound so loudly that I can hear it in my ears, and my palms begin to sweat. The rational part of me says ‘pick it up and open it. It’ll be fine’. The vulnerable, anxiety prone, part of me knows it is coming.
If I want to keep my life the way it is, I will have to go through a Disability Assessment for PIP, which is stacked against me. I will have to justify my right to the small amount of support I get. I will have to justify myself, my existence, my attempt at as normal a life as I can. I will have to sit there while someone judges me, and asks me leading, (unfair) questions, that are designed to deprive me of support and the things that able-bodied people take for granted.
I was born with Cerebral Palsy, and cannot walk or stand unaided. I suffer more or less constant pain, anxiety and depression – not to mention a few other things. The anxiety and depression have been made worse by this government and the media’s portrayal of disabled people as ‘scroungers’ and fakers. They have deliberately misled the public on the levels of benefit fraud, and we are paying the price.
I continued to sit on the bottom of the stairs, with all this going through my head. I feel worthless, and I know that I will be stripped of my Disability Living Allowance by the transition to Personal Independence Payment. I know that I am luckier than some. I have my husband (and his Pension Credit) to help us live, but for me it’s about independence. It’s about being able to behave like a ‘normal’ wife.
As things stand, I can help my husband pay the bills, I can take myself to the doctors or hospital appointments, I can go out (when I feel well enough), and see friends. I can feel like a ‘normal’ person. If they take my DLA, they take all that too – and I have spent years fighting to keep self-esteem and independence and to build a life for myself. I can’t lose it!
At this point, I am beginning to hyperventilate. ‘Be rational,’ I try to tell myself – ‘be RATIONAL!’ I fear the assessment itself even more than the consequences of it. Sitting on the stairs, I’m imagining all sorts of things. The assessor’s eyes look at me, and judging me. She looks tidy, she looks together, she tells herself. Yes I can, and I’m so lucky. What isn’t so lucky, is that I can’t sleep due to pain and anxiety….even though I’m so very tired.
I’m tired by life, and I’ve been made even more tired by government lies, and persecution, and the feeling that I have to struggle even more than I do already. Why is this happening to me? Why is this happening to any of us? Haven’t we been through enough? I start to cry. Eventually, mid panic attack, I ring my sister, who tells me to breathe deeply, and reminds me that whatever this government says or does, I am a person…and I am worth something. She tells me that if it is the assessment, I’ll handle it, and that they have no right to make me feel like this…in my own home. I tell her I’ll open the envelope and call her back, which I do.
It turns out, that is just a letter confirming my benefit amount, and my level of claim. I curse myself, knowing that I should have checked with a fellow campaigner before panicking, but like I said rationality doesn’t come into it anymore; and besides, there are so many other people like me (and worse off) that don’t have the campaigners to turn to, and don’t have the information at hand. Who cares about how they feel? This government certainly doesn’t!
As my heavy breathing subsides, I go back upstairs, and I’m physically sick in the toilet bowl. No one should be going through this. It is psychological torture, and I’ve had enough. This government needs to be held to account for its actions. There needs to be a proper impact assessment done on the Welfare Reform policy, because what I went through today is only a small part of it. It is causing pain, suffering, panic, malnutrition, isolation, homelessness, and even suicides. Somebody, somewhere, needs to make it stop… Now!
Source – Welfare News Service, 22 March 2014
The Department for Work and Pensions is setting up a new “service” offering “advice” to people who are off work with an illness for more than four weeks.
No reference is made to improving people’s health.
It should also be noted that sickness absence in the UK is among the lowest in Europe, and has halved over the past decade.
The announcement was made on the BBC News website shortly after midnight. Nothing has appeared on the Government’s own website so it seems the Corporation has gone back to being Westminster’s poodle again – breaking news for the government in order to give spin doctors time to assess the reaction and then write a press release that is more acceptable to the public.
The Health and Work Service will be a privately-run operation covering England, Wales and Scotland, offering “non-compulsory” medical assessments and “treatment plans”. This is reminiscent of the…
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“In case they’ve grown back” (picture at top of post) may be meant as humour, but something very similar has actually happened with Atos. See – https://unemployedtynewear.wordpress.com/2013/12/11/atos-expecting-miracles/
The government wouldn’t do it – so an influential Parliamentary committee has decided to launch its own inquiry into Employment and Support Allowance and the Work Capability Assessment that determines eligibility for it.
I will be submitting evidence to this inquiry and I strongly suggest that, if you have a story to tell, then you should provide evidence as well.
According to the Parliament.uk website, the decision to undertake an inquiry from today (February 6) was made in light of recent developments including the publication of several reviews of the WCA, expressions of concern from DWP regarding Atos’s performance in delivering the WCA, and the introduction of mandatory reconsideration.
Submissions of no more than 3,000 words are invited from interested organisations and individuals.
The Committee is particularly interested to hear views on:
- Delivery of the WCA by Atos, including steps taken to improve the claimant experience
- The effectiveness of…
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Reposted from Dr Éoin Clarke (PhD) – TheGreenBenches@Hotmail.com
In order to be placed on sickness benefit, claimants must undergo an assessment. Some of those claimants are assessed and told that they will be fit for work in the future, and as such they are expected to carry out work related activity (such as training) immediately. According to Iain Duncan-Smith’s Department, 1,300 of those told they’d be fit to work in the future and expected to carry out work related activity died during one 11 month period from January 2011 to November 2011.
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